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Lifestyle | KBeauty | Living with Multiple Sclerosis | Cancer Survivor | Beauty Blogger | My mind takes me to many places! Come along for the ride.


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Monday, April 4, 2011

MS really annoys me

MS is annoying to me. I don’t have a bad form of MS. To be honest I’m pretty blessed with the fact that I am only mildly affected by my disease so far. I suppose some friends would argue that what I do have at times is not mild but in all honesty I’m doing pretty well.

My biggie is fatigue but the running and keeping moving really almost negates the fatigue for me. I’ve also learned the nuances to Provigil/Nuvigil lol. For those that don’t know, Provigil and Nuvigil are medications used in MS to help with fatigue.

One of the big symptoms that I’ve had with my MS is crazy eye things (I call most of my MS problems wonky). I’ve had nystagmus (rapid movement of the eye) which made my world look like a TV that needed its rabbit ears fixed. If you’re too young to remember that here is a representation (smile). It looks as if you are seeing double but the image doesn’t stay still like this photo it keeps moving. Like laying the same picture horizontally scrolling over and over.




I also get muscle spasms and numbness from time to time. This in comparison to my world moving is not so bad.

There is this cool thing that happens when you have MS called a pseudo flare. Which literally means fake flare; I knew that biology class would come in handy one day! Pseudo flares can happen when you’re sick, exhausted, overheated or at other times for varying reasons. A flare in MS is when you’re having an active attack. These flares can last for months and are usually new symptoms. Pseudo flares are just problems you have previously had coming around to say hi.

So guess what I’ve been lately? That is right I have been sick. Not just a little sick but strep sick. I’ve actually felt fairly good, besides the burning stabbing poker that has seemed to have taken residence in my throat. I’ve even been working from home like the happy worker bee that I am. I even felt good enough to go buy a new cell phone case.

However, while getting ready to go to a birthday party on Saturday, guess what happens? A pseudo flare decides to step up and say “Hi”. I get up start to change and my world goes a little weird on me. This means my eyes are messing up.

Because of this I realize that I have to rest which I’m not always good at. However, this is the only thing you can really do for most of the MS symptoms. Or if you’re in an active flare you can take steroids but that is a different conversation all together. So I rest and my eyes today are fine, as well as the muscle pain I had in my right arm (sweet smile).

Let’s pray for a week of no weird MS symptoms and for the strep that has taken up residence in my throat to go away.

MS is one of the most annoying and frustrating diseases. I wish it gone but wishing doesn’t work, even if I am a Jeannie.

4 comments:

  1. I love your blog! I have been having problems with nystagmus and partial blindness this whole semester. I love your view on MS it helps me stay upbeat about being "wonky" <3

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  2. Kanani - Thank you for the kind words! For some reason I didn't get a notification of this post or I would have responded earlier! MS is manageable and positivity can do a lot!

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  3. Hi, I just saw this blog. I have MS too. Yes, MS is rotten, I wouldn't wish it on my worst enemy. But you hang in there! Waiting for a cure!

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