I'm not tired at all. I have mind numbing, bone aching fatigue.
Those not familiar with the feeling will never know how horrible it really is. Tired does not cover it, although that's the only feeling most can relate too. Pretend you have the flu, that horrible weak feeling you get, and then pretend someone has forced you to walk around an amusement park in the heat all day, and then at the end of that day you ran 5 miles.
Now times that by 10.
Yes it is that bad. Not all the time but right now I feel like I can't move. I go to the doctor and I feel like I've worked an 8 hour day and went for a run after I played with my god daughter for an hour or so. I have not felt like this since I was first diagnosed over two years ago and this is kicking my ass.
For me, a person with MS who does a lot and exercises, works full time, and manages a second business, stopping and resting is hard. Not stopping and resting has lead to this. Fighting it for the past two and a half weeks, I fell asleep at the stoplight on my way home from work. I'm lucky I didn't fall asleep on the ride home. Trust me when I say it was touch and go for awhile and that I really took a chance driving home that day.
I was having nightmares and not sleeping at all but instead of taking it easy and staying home to rest, I went to work and tried to push through it. Someone without MS would have been exhausted and stupid for doing what I was doing. With MS I really put myself in a bad situation.
Now I have to rest. (smile) My body is going to force me to rest. To my chagrin I admit I did this to myself. Well MS did it to me but I know better.
I'm not mad or depressed. It is what it is. I'm a bit frustrated with myself but there is nothing I can do about it now except not do it again. So I will rest and admit I can't do it this week. The fog will lift soon and I will take my Nuvigil and see if it helps me break through quicker.
I still walk with my pups, no running of course, which I will admit I was doing until just yesterday (silly smile) but no work and no driving until I'm sure I wont fall asleep.
Here is to MS everyone and to learning the lesson again that it is OK to slow down sometimes!
Those not familiar with the feeling will never know how horrible it really is. Tired does not cover it, although that's the only feeling most can relate too. Pretend you have the flu, that horrible weak feeling you get, and then pretend someone has forced you to walk around an amusement park in the heat all day, and then at the end of that day you ran 5 miles.
Now times that by 10.
Yes it is that bad. Not all the time but right now I feel like I can't move. I go to the doctor and I feel like I've worked an 8 hour day and went for a run after I played with my god daughter for an hour or so. I have not felt like this since I was first diagnosed over two years ago and this is kicking my ass.
For me, a person with MS who does a lot and exercises, works full time, and manages a second business, stopping and resting is hard. Not stopping and resting has lead to this. Fighting it for the past two and a half weeks, I fell asleep at the stoplight on my way home from work. I'm lucky I didn't fall asleep on the ride home. Trust me when I say it was touch and go for awhile and that I really took a chance driving home that day.
I was having nightmares and not sleeping at all but instead of taking it easy and staying home to rest, I went to work and tried to push through it. Someone without MS would have been exhausted and stupid for doing what I was doing. With MS I really put myself in a bad situation.
Now I have to rest. (smile) My body is going to force me to rest. To my chagrin I admit I did this to myself. Well MS did it to me but I know better.
I'm not mad or depressed. It is what it is. I'm a bit frustrated with myself but there is nothing I can do about it now except not do it again. So I will rest and admit I can't do it this week. The fog will lift soon and I will take my Nuvigil and see if it helps me break through quicker.
I still walk with my pups, no running of course, which I will admit I was doing until just yesterday (silly smile) but no work and no driving until I'm sure I wont fall asleep.
Here is to MS everyone and to learning the lesson again that it is OK to slow down sometimes!
I know one of the hardest things for us MS'ers is having to slow down, because that fatigue is SO overwhelming,and so little understood by others. No marathons for you for while! Glad you made it home safely, and tell yourself you're not really lounging around- you're busy bonding with your 'boys'!
ReplyDeleteHehe, I actually plan on doing one at the end of the year. Just need to rest for awhile. The MS walk is this Saturday and then there is a Corporate 5k in April. I think I'll be OK by then, but if not I promise no running just fast walking (smile).
DeleteI agree, after taking a short repite you'll be able to jump right back into training. Its hard to do but I bet you can handle it! I am thinking of doing a half this spring, I hope I do it.
ReplyDeleteI am pretty active too and I find myself overdoing it occasionally. I'm getting better at managing that threshold and taking it easy at times. Still work to do though, I can always get better at resting!
Hello Genie,
ReplyDeleteWhat a beautiful blog design! I like the drops...
I came across your blog on fb and was wondering if you have tried energy work for MS. I do distant healing over the phone and am seeing great results.
If you ever feel like exploring this let me know.
Wellness for you always,
odalis kerwell
Hi Genie. Love your blog and the way you explain exactly what MS does. Hang in there. I know it sucks to be held down when our personality is anything but a couch potatoe.
ReplyDelete